Following The Rainbow Home

Its been a long time since I actually prayed, I mean dug deep into my soul and reached out for that guidance and gave it my all to get a connection to the big guy in the sky. Its sad but true, I stopped praying when our prayers weren't answered and we lost both Aunt Doll and Papa within 2 months of each other. Maybe I was holding a grudge for taking them so close together, that I just stopped making that call. Whenever I have lost a loved one, I have always seen a rainbow, within minutes of receiving word that they had left this earth, I would look up and there would be that rainbow. That rainbow that gave my heart a flutter and for a moment the sadness would disappear, because that was their calling card to me, to say its okay.

Over the past few weeks I have seen many rainbows, maybe its from the countless days of rain we have experienced, or maybe its my guardian angels on the other side, trying to show me the way. Its been an exhausting summer, the mornings were long and rough with our daily trips to the therapy center, but I can honestly say that it was worth every leaky eye moment and countless F-bombs I had to text to get where we are today! The change has been amazing, I am in awe everyday seeing more and more progress and even family and friends who didn't realize it was as bad as it was, now finally see the light because they have seen such a drastic change as well.

Last Monday, was the first day of school, the Prince was very nervous, especially Sunday night, you could see the anxiety building throughout the weekend, but by Sunday I thought he was going to explode. This isn't your typical "1st day jitters" this was a " holy shit I am going back to school, I cant do it mountain of anxiety" . I'm not sure I slept Sunday nor did the Prince, once my alarm went off I sat up on the side of my bed and noticed there was a rainbow, shining off the sliding glass doors from the light in the bathroom, it made my heart flutter. Sitting on the edge of the bed for the first time in a long time .....I prayed .........I prayed for the Prince to make it through the day, to make this be it, make this be the right path for him to follow, to make all that we went through worth it, I prayed for light to lead me  in that dark tunnel we had been traveling, I prayed for peace and happiness in my heart, because I don't know what else I can do.

I was amazed at how great he went off to school, how he got out of the car even thou he was so nervous, he was doing it, I felt so relieved as I pulled away from the school leaving him. I finally felt at peace ...............until 12 minutes later and as I pulled into work my cell phone started ringing and it was the Prince............sobbing so hard that a teacher had to get on the line with me. He was having a major anxiety, panic attack. I whipped my car around and 12 minutes later I was there at the school ..... only 24 minutes into the new school year ............thinking to myself ...........obviously my connection to the big blue sky was disconnected or maybe I got a busy signal ..... because this wasn't what we had discussed this morning!!! I took PC outside and let him sit in the car, I tried talking to him, reasoning with him that he's got this, he can do this, and when he was ready, we would try, try again. In the meanwhile I was back at sending my F**K, F**K, F**K text to my mini support group aka  girlfriends! While I was engrossed in my own pity party of "OMG's this cant be happening, what am I going to do", I realized that the car door opened and PC was standing outside of my car ready to try it again....... 48 minutes into the school year we go again.

I anxiously awaited for the hubster and the Prince to call with how wonderful school was, sadly I didn't get that call, instead I got the call how much he hated it and wasn't going many "thugs" and disruptive kids .......SHIT ,,,, there go my leaky eyes.... again........will this ever end??? When I got home I laid with the Prince and he told me about his day ... ... It wasn't so bad ...... and he had some very interesting stories to tell..........

Day 1 - we learned that one of the teachers had 14 felonies by the time they were 12 ... and taught in the prison system ... I thought the moral of the story was " They turned their life around ... and now are helping others". Apparently the moral of the story was "They aren't afraid of the thugs"

Day 2 - the morning had a rough start - Again I anxiously awaited for the after school call and held my breathe to hear how it went .....and he had a good day ... WHAT??? Seriously??? Are you kidding?? It was good?? And he thinks he will like it .... well .....he will like it better when the thugs are gone....

Day 3 - Stomach bug - for all those nah sayers ..... it was real ... the smell out of that bathroom could kill someone ......

Day 4 - Had a good day ...OMG - this melts my heart.......he also met another anti-social girl ...
 and he decided that one of the teachers hair reminds him of his stuffed pillow when all the stuffing came out of it ... ummm yeah I don't know WTH it means....but it was a good day ... so I will take it

Day 5 - It was another good day - We made it an entire week (minus one day) - and he is willing to return on Monday!!! OMG - that's fabulous!!!

As I drove home Friday night, there is was......right in front of me.......the biggest brightest rainbow I have ever seen, leading me home. And once again I felt that flutter in my heart and I knew it was my army of guardian angles telling me that it will be okay, we've got this!

Now if we can just master getting our homework done...................

Learning the 2 Step

Lately I feel like I am practicing my dance moves, two steps forward, two steps back ,cha cha cha …. But  inquiring minds want to know …..Is it working? And how is the Prince doing in the intensive therapy program?  As to be expected he hates it, thinks it’s stupid, and doesn’t know why he needs to be there, some days are good, some days are bad, some days are better than the day before. It has been a long, exhausting 4 weeks and 18 days, with many days of leaky eyes (some days his eyes leak …some days my eyes leak) ……... BUT, I think we are making some progress....Of course some days we make way more progress than other days!! But I guess progress is progress.
I'm ever so thankful for my amazing support system of friends and family, I'm thankful I have friends that I can just text the F-Bomb to 100 times if I need to, because some days you just gotta scream or text) F**K , F**K , F**K !!! Just to feel better and carry on!! Well and I'm pretty sure they would frown on me screaming it there at the center!! And now I have a gift fairy at work, who drops little fun goodies off for me .... it puts a smile on my face, especially when its been a leaky eye day!! So thank you all for the love and the support ~

I’ve learned a lot of things in the past 4 weeks, and I know that my situation could be so much worse. Everyone’s struggle is different and unique. All the kids at the center are there for very different reasons and everyone’s OCD’s, Phobias and  Anxieties are different. I’ve watched the past 4 weeks, as some of the kids have phased out of the program and got to return home, many of the families are from out of state, so I am thankful that I am simply across the bridge!!! And I am hopeful that we too will phase out sooner than later.

I’ve spent a lot of time in the lobby, mainly because the first 2 weeks,  the Prince and I would argue the WHY’s he needed to be here and do these things, so I would need to just walk away and let the therapist work with him without me.  I spent many times just observing in fascination, some of these other kids, watching what they had to do and spoke to their parents, I want to know about the issues they have, I almost crave the conversation, so I didn’t feel so alone and isolated. But as I said all issues are very different.

Some of the kids we have encountered have been  “Shower Girl” she took 3 hour long showers, with the water running ……she would first CLEAN the entire shower, scrub every inch of it, take apart the drain and shower head  (I don’t think I’ve ever done that ever) after the shower was clean she would get in, still water running, have to scrub ever kook and cranny plus her very long rainbow colored hair, then she would redo the ritual of cleaning the shower again… yes with water still running for 3 hours!! After she was out of the shower she had about 10 other rituals that she had to do between 500 to 1000 times EACH!! Her mother told me it literally took her almost 5 hours to get ready to go anywhere!!!  Her last day after 10 weeks she took a 16 minute shower!! She also could not ride in the car without the window cracked because she had to continually push the germs out the car window…….arms failing about especially when her mother sneezed or coughed! The therapist made them sit in the car with the windows rolled up, so that the germs couldn’t escape ….while the mother coughed and coughed…and not all while NOT covering her mouth.

“Contamination Boy” he won’t touch anything ……..and hadn’t left the house in over 2 years. Simple things like the door knob, picking something up from the floors, walking by people, even people breathing the same air as he, would cause him to hold his breath until he passed out most times so that he didn’t get the contaminated germs. One of the things he was required to do …… help get him over his fear of contamination and germs… was stick his hand in the toilet water (several times) and NOT wash it (ewww) and then shake someone else’s hand …… needless to say …. I was sitting on my hands in the lobby that day, not making eye contact because I did NOT want to be that lucky someone to shake his hand!!

Another “Contamination Boy 2” argued the facts about cleanliness for over 45 minutes refusing to participate and why he would NOT sit on the hardwood floor, with the therapist who was sitting there on her knees with palms planted firmly in contact with the floor, then she put her face down on the floor and when she stuck her tongue out to lick the floor, I think he almost past out from that exposure. I am certain that my eyes grew wide just watching!

 I sit in fascination watching these events take place, I think that some of these methods are CRAZY ......... but fast forward 5 days later I walked into the center with “Contamination Boy 2” actually sitting on the lobby floor, with his hands palms down and looking at his parents and the therapist and instead of arguing, he smiled and said “What’s next- that was easy”.  Next up was to catch a cockroach, I didn’t stay for that adventure as they headed to the stairwell on their search for a giant cockroach (ewwww).

“Hair Eater” he pulls out his hair (eyebrows, eye lashes, head, arms etc.), and eat it, but he also pulled out his mother’s hair (or maybe cut it – I don’t know) while she slept to eat it! His mother had to cut off her hair off to avoid the situation. He also has issues with personal space, rolling chairs and calling mom “Chubby” and squeezing her thighs…. Well among other things.  

“The World’s a Virus Boy” from what I can tell he thinks he will catch “Flesh eating bacteria virus” from basically doing or touching anything … he has only been there a few days, today the same therapist that was licking the lobby floor, told him that he probably already had it and he would probably die by Monday ……he laughed and said “I know, I know, but it could happen” and then he moved on to his other exposures for the day.

To watch these kids, and see the struggles that the kids and parents have, it’s been an eye opening experience. I watch with fasciation as one by one, these strange treatment methods have these kids come out of there comfort zone and face their fears. As for Prince Charming …. Some days he works on it, other days he refuses totally, but once he realizes that I’m not giving up and we aren’t leaving until he does his “exposures” then he eventually will get started.

Yes its true some days (ok ….most days)  I want to just toss my hands in the air and yell “ F**K it”   ~ runaway from reality, take a break and toss in the towel and say your right, you don’t need to be here ~ I’m done~ but then there are days like today, when he did it , he did all of his extreme exposures that make his skin crawl, and put him so far out of his comfort zone like actually walking up to people and speaking to them, while looking at them, playing a game with them and best of all … .doing it all with his hair out of his face, so that he didn’t resemble Cousin It! So with that, comes hope that I am doing the right thing, no matter how painful this process is, I am doing it, because in the long run, it’s what’s best for the Prince.